'Cause you said, said he was the one
Baby yes you said, said you were in love
Back to basics: Step 1
Arthur
JJC
Outgrowing 17
Dreamer
Poet
Lover
Atheist
Left-Handed Saggitarian
My passions: Step 2
Food
Company
Writing
Movies
Music
Debates
What i am: Step 3
Strengths:
Confident
Sensitive
Eloquent
Weaknesses:
Paranoid
Unorganized
Careless
Dreams of a globetrotter wannabe: Step 4
Paris
Shanghai
London
Gold Coast
Japan(Tokyo)
Rome
Taiwan
Hong Kong
New York
San Francisco
South Korea
Wishlist
My own domain
Scholarship
To publish a book
Want to know more about me?
Read my blog and you would start discovering fragments of me
P.S. All the works here posted belong to me unless stated otherwise. If you want to post them elsewhere, please seek prior permission from me before doing so. Thanks.
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A real life story about a Haemophiliac
Monday, September 1, 2008, 10:56 AM
This is about Haemophiliacs and why we should donate to The Haemophilia Society of Singapore. There's a personal story from a Haemophiliac himself and some information about Haemophilia such as the treatment cost. It apparently was started by a schoolmate of mine who's a haemophiliac or at least his story was included in the email i got. I suppose the story's true since i guess most of my schoolmates forwarded it to me as well. Presumably true i suppose. Besides, the person included his real name... Dosen't seem like a cock and bull story... I thought I will just do my part and put it up on my blog. Put it up on your blog too if you empathize with him or think it's a worthy cause people should support. :)Hi all,
Haemophilia is a genetically inherited bleeding disorder where there is a deficiency of a clotting factor in the blood. This results in a form of bleeding tendency. Thus, the haemophilia patient often suffers from easy bruising and bleeding into muscles and joints. Because of the genetic pattern of inheritance, the disorder generally affects males only. Females with the haemophilia genes are known as carriers.
I am one of the many haemophilia patients in Singapore and I am here trying to reach out to all of you to help us out in one way or another. With the advance medical technology these days, there's still NO CURE to haemophilia. We, the patients, rely on the injection of Factor 8 or Factor 9 into our body in order to live life like any normal human beings.(Details of the conditions can be read from www.haemophilia.org.sg)
Here's the cost of medication(for me):
5 Units of factor 8 per injection: S$22.74 X 5= S$113.70
3 injections per week: S$113.70 X 3= S$341.10
4 weeks per month: S$341.10 X 4= S$1364.4
Note: cost of each unit of the factor 8 has been heavily subsidized by hospital grant as well as Haemophilia Society's subsidy. Actual cost per unit is $122 for factor 8 and $242 for factor 9.
The point is, after the incident of NKF as well as the Ren Ci monk (Damn these pple), the haemophilia society of Singapore lost her greatest donor. Donations is very low and the society is basically falling on the balance that we have to help subsidize the patients costs. If this situation carries on, the society will soon be unable to subsidize the patients. In other words, it will become and other burden for the patients.
You can help, by just forwarding this message to whoever is unaware of the existent of this group. Yes, we are small, and thus we are vulnerable. Please help in whatever way you can. Some examples:
Corporate leaders: Donate money to help us through this difficult time.
Students: Spread this message around. Especially to those student leaders who are in search of beneficiaries for any charitable event, add 'The Haemophilia Society of Singapore' into your list of beneficiaries!
To anyone else: simply forward this message to as many people as possible in your address book!
Please direct all donations to the following:
The Haemophilia Society of Singapore
www.haemophilia.org.sg
Or email to secretar@haemophilia.org.sg
The financial records of the society can be obtain from the webpage mentioned above. Don't worry, your donations will definitely be put to good use.
IF U ARE STILL NOT CONVINCED ENUF TO DONATE , Please READ ON...
My Story:
I am a student, currently studying in Jurong Junior College. I am a haemophiliac (a term for haemophilia patient).
I don't remember when i started to know about this disorder in me. My mum takes extra care for me, and my father works extra hard to support the family. And my role, is to use up half of the family income each month. Let's drop the issue about money.
Being a male, I am a very active person. I play all kind of sports that i come in contact with, only to get scoldings by my mum. 'Others can play, but u cant, you are different.' That's what my mum told me. 'you are unique' might be something that one might one to hear, but all i heard is ' you are different'. That makes me sound like a freak.
But my doctors encouraged me to take on sports as long as i know how to take care of myself. All my classmates and teachers know about my disorder and took special care of me. I shud've been glad about it, but i felt so different.Why cant i be like others?
Until one day, wen i turned up for the Annual General Meeting for the Society, I spoke to this mother of a haemophiliac. She told me 'My son dare not do anything, PE , camps in schools, outing, he skipped them all. All he does is staying at home and play computer.'
This is a very common thing that happens to haemophiliacs, they close themselves in. We can lead normal lives if we receive prompt and adequate treatment. We could be like any other person out there, do the things that we want to do, if we are able to support ourselves for the treatment.
A summary of the story:
a.) Haemophiliacs close themselves in due to factors such as cost of treatment, views from society etc.
b.) Not able to pick up life skills like any normal person. Miss out things in life.
Not only everyone has the right to live, everyone has the right to live life to the fullest.
Surviving for survival is plain emptiness without a dream, let us have dream..
WE are a minority, but we have our rights to live and dream as well...
Grant us the chance, by donating now. Thank you...
With regards,
Wong Yang Ping (18 years old)
yangping90@hotmail.com
Labels: Donation, Factor 8, Factor 9, Haemophiliac, Hospital, NKF, Ren Ci, Sad, Singapore, Story, Subsidy